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Alex The Leukodystrophy Charity

Alex The Leukodystrophy Charity (Alex TLC) is a trusted and experienced organisation offering high quality support and information for all those affected by a genetic leukodystrophy.
The majority of these conditions cause progressive neurodegeneration, are largely untreatable and sadly terminal, and those affected deal with many common factors. Alex TLC focuses on the similarities caused by these conditions, embracing all affected within a community of Tender Loving Care.
We do this through a comprehensive and sensitive package of support, managed by real people with actual experience of the many aspects of living with a leukodystrophy. We undertake various projects to improve the quality of, and access to, treatments for leukodystrophy through our collaborations with the NHS, specialist medical professionals and scientists, peer and umbrella organisations, and corporates with a common goal.
Not only are we a charity, we are also a business and our south east London charity shop chain and online charity shop is an integral part of Alex TLC, providing employment and volunteering opportunities for the local community as well as much needed high street awareness of these little-known conditions. These shops are our financial backbone and an important link for further income and awareness raising opportunities.